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Archive for October, 2004


You Are Not Alone

Monday, October 25th, 2004

The bookmark that
Adel gave me.
Someone I know had an operation last week. Surgeries, no matter minor or major, are always harrowing, not only for those undergoing it, but for family and friends as well. We stood by and worried, wishing that there was something that we could do to ease the pain, the fear and the uncertainties but there was little that we could do except pray.

The surgeons have done their job. Now is the time for healing – physically, emotionally and spiritually. We want you to know that no matter what, we will always stand by you, giving you all the support that we possibly can. You can always depend on us when you need someone to talk to.

I do not know what faith you are inclined towards but I will lift you up to God in prayer, everyday. When all that is humanly possible has been done, the one other thing that we can do is surrender ourselves to Him. He will never allow us carry more than we can bear. Trust in His Providence and all will be well again. He has worked wonders for me. I am confident that He will do the same for you.

When you feel that the world around you is falling apart, do not lose heart. Remember The Serenity Prayer. It has consoled me many times when I felt that my life was spiralling out of control. Know that irrespective of what your beliefs are, Jesus loves you all the same and is walking with you every step of the way. And also know that we are not far behind should you need us. Here is wishing you a speedy recovery.

The Serenity Prayer
by Reinhold Niebuhr

God, give us grace to accept with serenity
the things that cannot be changed,
courage to change the things
which should be changed,
and the wisdom to distinguish
the one from the other.

Living one day at a time,
Enjoying one moment at a time,
Accepting hardship as a pathway to peace,
Taking, as Jesus did,
This sinful world as it is,
Not as I would have it,
Trusting that You will make all things right,
If I surrender to Your will,
So that I may be reasonably happy in this life,
And supremely happy with You forever in the next.

Amen.

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Little Hero

Sunday, October 24th, 2004

There are those who allow one tragedy to perpetually hold them down. They stay down without a struggle, never to see the beauty of day again. And then there are those who find meaning in being heartbroken and rise above the calamity to be a guiding light of hope for all who need it. Lilian is one such courageous person.

She not only recovered from the tragic loss of her baby but turned it into a crusade to help other parents in similar situations. She has put up a website dedicated to her son Vincent, runs an active website and forum on parenting and breastfeeding, and another that provides encouragement and information to caregivers of critically ill children. Lilian was also featured in In.Tech recently.

When we met after Mass today, she presented me with a book that she authored and published titled My Hero. This bilingual book in English and Chinese is a comprehensive guide for caregivers of infants and children who are warded in the intensive care unit. Within it are a glossary and notes on medical care, and most of all, the poignant journey with Vincent. The online version in PDF is available here. May God continue to bless you with courage and wisdom, Lilian. You are that flicker of light to many when darkness seems to last forever.

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Telling Dreams

Sunday, October 24th, 2004

What do we tetraplegics dream of in our sleep? Do we walk in our dreams? Do we dream in colours? If dreams are the true reflections of our innermost sentiments, then my world is a monochromatic drama of fear, helplessness and insecurity. I used to have this vivid and recurring nightmare of suddenly plunging from a great height. Amidst the nerve-racking sensation of weightlessness and free falling, my hands would desperately flail on reflex to break the fall. Consequently I would be jolted awake, hyperventilating, heart beating rapidly and badly shaken from the ordeal.

I dream often. I know I do. The distressing part is that the moment my eyes caught light, the images that had been acting out in my mind would begin to melt into obscurity. As hard as I tried, I seldom could fully recollect those nocturnal theatrics except for fragments that made no sense when pieced together. For a while after that, it would feel like some parts of my life were missing, irretrievably lost in the muddle of my erratic psyche.

One time, I found myself swimming for my life in a swollen river that had threatened to swallow me up. I paddled and kicked with all my might but to no avail. The raging currents carried me further and further away from the muddied banks. Another time, overwhelming fear so totally paralysed me that I could hardly move. I opened my mouth to scream but no words came out. That feeling of impotence would affect me for hours later, sometimes days.

The most significant dreams I had were of Mum. I dreamt of her three months after she passed away. We were in an old fortification overlooking the sea. It was dusky. She looked dispassionate and spoke nary a word. We stood there looking at each other for a long time. Then she beckoned me to follow her. As I was deciding whether to follow her or not, I woke up. One early morning several weeks later, in the absolute darkness, I heard her voice saying, “If you do not take care of yourself, you will not live beyond two years.”

That prompted me to get my blood screened. Indeed, the results revealed that all was not well. My serum creatinine had shot up significantly, I was anaemic, my lipoprotein ratio was hovering on the borderline and those uric acid figures did not look good. That was the period which I had lapsed in looking after my health. I had refused to take the medicine that was prescribed because of the extreme side effects that I was experiencing. My intermittent catheterisation programme went to the dogs. I performed it only when I remembered instead of every four hourly. Beyond doubt, my kidneys were in a bad shape. Nevertheless the question is: Did I really hear Mum?s voice or was that just a dream? I cannot be sure but that probably had saved my kidneys from further damage.

Regardless of the nightmares that have been plaguing me every now and then, I am thankful that one thing has not changed. Do tetraplegics walk in their dreams? I know I do, all the time, every time. In the two decades that I have been paralysed, I have never ever dreamt of being in a wheelchair. I was walking, I was running, I was swimming, but never forlornly sitting on a wheelchair. For those brief moments that my mind was allowed unrepressed creative liberty, I was free again, unshackled from the body that no longer heeded my commands. The one thing that has changed is that I have not dreamt of falling uncontrollably again after I broke my neck. That is one nightmare less to worry about.

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