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Archive for March, 2006


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My Own Housemaid

Friday, March 31st, 2006

Housework is taking up too much of my time and energy. Tasks that usually take fifteen minutes is taking me forty five minutes to complete. By the time I am done, I am too sapped to do anything else. My body takes a longer time to recover because of my physical and health conditions. The low protein diet is not providing sufficient calories to keep me going the entire day. I am aneamic because of renal failure. My diaphragm function is compromised because of the level of my spinal cord injury. That affects the amount of air that goes into my lungs. I get breathless easily. I get tired easily. Did I just say housework is taking up too much of time time and energy?

From Ramp To Steps

Wednesday, March 29th, 2006


Ramp that was too steep but usable.
File photo dated January 30, 2005.


Brick by brick, the ramp was covered over.
File photo dated July 28, 2005.


A flight of stairs was built over a ramp here.
File photo dated March 27, 2006.
Photo by Wuan.

Inaccessible Sungai Dua

Tuesday, March 28th, 2006


Braving the traffic at Jalan Sungai Dua.
Photo by Wuan.

One of the key concepts of Independent Living for people with disabilities is that they should live in the community instead of in institutions. Humans are social creatures. Disabled persons are no less that. We want to make friends, enjoy a glass of teh tarik at the local mamak stalls or a movie at the cinemas, and generally do everything that the non-disabled do.


Dangerous and inaccessible walkway at Jalan Pekaka.
Photo by Wuan.

One of the main barriers of community living for disabled persons is accessibility. Walkways are constructed without kerb ramps for wheelchairs and the mobility impaired and tactile tiles for the blind and visually impaired. Very often, road signs, lamp posts or post boxes are left smack in the middle of walkways. That not only impedes the passage of wheelchairs but poses a potent danger to the blind when they walk right into it.


Cars parked by the road side at Lorong Pekaka Satu.
Photo by Wuan.

Yesterday, I needed to go to the bank. It is about 1 km from my apartment. Wuan accompanied me. We took the road along Jalan Pekaka, then cut through Makro and down Jalan Sungai Dua towards USM. All along the way, we had to brave speeding traffic. Jalan Pekaka is notorious for traffic accidents and I was half expecting to be hit by a vehicle the entire journey.


Jalan Sungai Dua.
Photo by Wuan.

This fear was exacerbated by a story related to me when I was at Bangkok. Many parts of Bangkok are not accessible. And I noticed that the cars there were being driven at breakneck speed. I asked someone if there ever was an accident involving a wheelchair. Sadly, the answer was positive. A man on a wheelchair was hit by a truck on the road. The truck driver could not see the wheelchair from where he was. The impact threw the man on the wheelchair quite a distance. He was killed instantly.


A flight of stairs was built over a ramp here.
Photo by Wuan.

Crossing to the other side the road at Jalan Sungai Dua was another hazard. Without a pedestrian crossing, we had to practically run across the road to get to the other side. When we reached the bank, I faced another problem. A flight of stairs was built over where a steep ramp once was. Wuan wanted to pull my wheelchair up the steps but I refused. It would be dangerous to her and me if she were to lose her grip or miss a step. I waited by the side of the road while Wuan went into the bank.


Waiting outside the bank under the hot sun.
Photo by Wuan.

The sun was extremely hot. People with spinal cord injury like me have problems regulating body temperature and sweat. I began to feel dizzy as I waited under the blistering heat. Fortunately, the bank has some very helpful and courteous staff. They came out to get me to sign the forms and quickly completed the transaction. The journey back was equally as scary. At times like this, I wished I was back in Japan with her wide walkways and thoughtful drivers.


Inaccessible narrow walkway that even the non-disabled had problems using.
Photo by Wuan.

That is one of the reasons why many people do not see disabled persons out and about. With such dangers lurking at every street corner, we have no choice but stay in or look for alternative transport. Not many of us can afford alternative transport though. Taxis are expensive. Buses are not accessible. Those whose livelihood depended on going out in the street jungle know the risks and still go out anyway. What choice do they have?

Home

Saturday, March 25th, 2006

Michael Buble’s Home is playing. I am really home! Nothing has changed except things are veiled in a thin layer of dust. Familiar surroundings, familiar sights. Nothing can beat this feeling. To be safely home - where my heart is - for a while anyway.

Going Home

Friday, March 24th, 2006

Wing Hon, Christine, Wuan and I will be heading to Penang this evening. This particular journey has invoked in me a sense of reluctance. I have been away from home for three months. There is a feeling of anxiety in me now, wondering what awaits me there. I have almost forgotten how it feels like to be in my apartment. Will I be as comfortable and at ease as I am here in Kuala Lumpur? All the tasks that I have left behind needs to be relearnt - cooking, laundry, cleaning. On top of that, I will be working on Independent Living projects beginning April. This is something that is very new to me, and more so to the disabled persons community in Penang. I foresee a lot of work ahead. Nevertheless, I believe that this will also be a fulfilling pursuit. If this concept is successfully adopted, many severely disabled persons will benefit from the liberation that comes with it. Hello Penang, I am coming home!



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