Peter Tan conducting Independent Living course at Institut Sosial Malaysia.

The main office block and seminar rooms were located atop a hillock just at KM6 of the Lebuhraya Kuala Lumpur – Seremban. It commands a panaromic view of Bandar Tasik Selatan and the surrounding areas. About 20 social welfare officers and social workers participated in the four hour course spread over two sessions.The first session was Pengenalan Kepada Kehidupan Berdikari (Introduction to Independent Living) and the second on History of Independent Living.

Peter Tan sharing the history of Independent Living with participants at Institut Sosial Malaysia.

The practice of Independent Living was new to most of the participants as they were unaware that severely disabled persons too can live independently if given the right support and opportunities. After the sessions ended, I could feel that they got a pretty good grasp of what Independent Living is all about, especially how it is practiced in other countries such as the USA, Sweden and Japan, among others. And I need to brush up on my Bahasa Malaysia. There were more than a couple of times when I could not find the correct words to use and had to be “rescued” by the participants.

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Panel Discussion 2 – Barrier-Free Built-Environment and Universal Design
(L-R) Puan Khairiah Talha, Mr Patrick Ang, Cik Khairul Nisa bt. Haron, Cik Naziaty Yaacob (Chairperson), Peter Tan, Puan Ch’ng Gaik Bee @ Dalilah Bee Abdullah and Puan Tan Choo Lan.
Photo by Wuan.

My first presentation at the panel session for special interest groups of the 2nd Malaysian Conference on Rehabilitation was titled “Inclusive Environment in Malaysia: From the Perspective of a Wheelchair User.” The main point of the entire presentation is the “Circle of Mobility for Disabled People.”

Circle of Mobility for Disabled People

The concept is very simple. The circle represents the journey from the point of origin to the destination and then from the final destination back to home. The journey includes the built environment which is represented by the line and public transport. The entire journey must be seamless. Any break in between may cause the disabled person to be stranded and unable to complete the journey.

Peter Tan speaking at the 2nd Malaysian Conference on Rehabilitation.
Photo by Wuan.

In Malaysia, the circle is broken in many places. The moment a disabled person gets out from the house, he will be faced with barriers in the built environment. These includes walkways without ramps, walkways littered with street furniture and other obstructions. Public transport is totally inaccessible. That is the reason why many wheelchair users are stuck at home and unable to go out.

The solutions are very simple actually. The government, be they federal, state or local, have the resources and means to resolve this issue. They must also take the blame for allowing this problem to fester until now. The four points for the solution that I presented were:

1. Adopt Universal Design in all future infrastructural developments
2. Enforce UBBL 34A and incorporate MS1331 into relevant legislation
3. Audit Access officers in local governments to implement and enforce UBBL 34A
4. Establish a time-frame to make Malaysia accessible to all

This is the abstract for my presentation:

Abstract
Inclusive Environment In Malaysia:
From The Perspective Of A Wheelchair User

Two important factors determine whether a disabled person becomes home-bound or live a full life outside. One is public transport, the other the built environment. One cannot exist without the other. Neither exists in Malaysia. Some may argue that parts of the built environment have become accessible in recent years. This is true to a certain extent. However, the lack of interconnectivity makes these pockets of accessible heaven another unreachable speck in the horizon for many still. There is an urgent need to impress upon the people responsible for infrastructure that an accessible environment not only provides mobility. It empowers disabled people to become independent and improves their productivity overall. Furthermore, an inclusive environment benefits everyone. What is good for disabled people is good for everyone else. This is a win-win situation for all. This paper presents my experience as a wheelchair user with examples gleaned from the Independent Living movement in Japan.

Below were the topics that my fellow panelists presented:

The Construction Industry’s Role in Facilitating for Social Inclusion
Puan Tan Choo Lan
Bahagian Kawalan Bangunan, Jabatan Kerajaan Tempatan,
Ministry of Housing and Local Government, Malaysia

Barrier-Free City Kuala Lumpur
Puan Ch’ng Gaik Bee @ Dalilah Bee Abdullah
Architect, Architect’s Department,
Kuala Lumpur City Hall

Barrier Free City Petaling Jaya
Cik Khairul Nisa bt. Haron
Assistant Director/Planner, Development Planning Department,
Petaling Jaya City Council, Selangor

Collaborating with the Local Authority in Achieving Barrier-free City, Singapore
Mr. Patrick Ang
Level Field Consultants
Singapore

Do We Need Legislative Changes Before We Care?
Puan Khairiah Talha
Secretary General, Eastern Regional Organization for Planning and Human Settlements (EAROPH)

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I will be speaking at the panel session on “Barrier-Free Built-Environment and Universal Design.” The topic of my presentation is “Inclusive Environment in Malaysia: From the Perspective of a Wheelchair User.” I will also be presenting at the concurrent session for special interest groups on “Social Advocacy on Disability Issues” tomorrow. My topic for the con current session is titled “Rights-Based Advocacy on Disability in Malaysia: An Overview and the Way Forward.”

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I checked around and none of my well-connected friends in Penang have seen the prototype of a Rapid Penang bus with the ramp installed yet. This is how it is in Malaysia. Stakeholders are not consulted on their needs and do not have a say in how these needs are being managed. RapidKL was deaf to the various comments on the prototype of accessible bus and went ahead to build similar buses with ramps and wheelchair locking devices that are neither functional nor safe to use.

Is this going to be another fiasco like RapidKL’s? Time will tell. Nevertheless, having been involved with these people, I am not too optimistic. How do you expect people who have very little understanding of what disabled people’s needs are to do the right things? But this is how things are being done in Malaysia. We spend money building amenities that are not functional and then spend money again to rectify the mistakes, or maybe not at all. Malaysia Boleh!

NST Online » Local News
2008/10/16
Wheelchair ramps on buses

GEORGE TOWN: RapidPenang buses are set to be more disabled-friendly with the move to install wheelchair ramps on board its 140 new buses.

The installation of the wheelchair ramps is expected to be completed by early next year.

RapidPenang chief executive officer Azhar Ahmad said the disabled-friendly buses would be delivered in batches from March.

“The ramps will ensure that the disabled can commute on public transport,” said Azhar.

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I hope this message will not fall on deaf ears. Disabled people in Malaysia have been facing such issues far longer than the 24 years that I have been on a wheelchair. Perhaps Datin Seri Jeanne is not aware that Malaysia already has the Uniform Building By-Law 34A (UBBL 34A) that requires all public buildings to comply with Malaysian Standard MS 1183 and MS 1184. MS 1184 is the Code of Practice on Access for Disabled People to Public Buildings. It specifies how accessible facilities inside buildings should be built. The UBBL 34A has been gazetted by the various states in the mid-1990s.

Sadly, this provision in the UBBL 34A is seldom enforced by local governments. Public buildings are still allowed to be constructed without fulfilling the said requirements. To exacerbate matters, there is no law to ensure that external built environment such as pedestrian walkways are accessible to disabled people although a code of practice in the form of Malaysian Standard MS 1331 has been drawn up for such purposes.

The newspaper report also stated that Datuk Seri Jeanne hoped schools will encourage children to help disabled people if they come across one and that we should change our mindset to be more caring. Although it is heartening to note that she is trying to inculcate a caring attitude in students, it would have been better if we can build a society where disabled people can live independently instead of depending on such ad hoc forms of assistance. At the moment, disabled people, especially those with severe impairments, are unable to practice independent living because of the prejudices against disabled people.

Society still hold on to the view that disabled people cannot do things for themselves and therefore cannot live independently. There is this notion that disabled people need charity to survive. These are all fallacies. People are disabled by the environment and attitudes, and not by their conditions. It is how we build things and how we perceive disabled people that is disabling. Malaysia has to move from the antiquated Medical Model of Disability to the Social Model of Disability in order for disabled people to benefit from a level playing field in society.

Medical Model of Disability sees the disabled person as the problem. It emphasizes the rehabilitation of disabled people to make them fit into society. The focus is on correcting the impairment rather than meeting the needs. Social Model of Disability defines the difference between impairment and disability. Impairment does not necessarily lead to disability. People are disabled by manmade environmental barriers and social prejudices. The Social Model of Disability advocates the restructuring of society to eliminate institutional discrimination. It promotes the establishment of a conducive environment where disabled people can coexist on equal terms with society in general.

In my working trips overseas, I have met people with severe physical impairments in that are living independently in their communities. They are able to achieve this through a social support system that provides personal assistants, peer counselling and independent living skills training, among others. The accessible built environment and public transport system also plays an important role in enabling disabled people to move around conveniently to participate in the activities of the community that they live in.

Disabled people in Malaysia have been screaming themselves hoarse to advocate for similar social support systems to enable us to live independently in the community too. If it can be done in other countries, it can be done here. For one reason or another, issues of disabled people have not been given the attention it deserves. Disabled people are still being marginalized in all areas in society.

Where disability rights advocates have failed, perhaps Datuk Seri Jeanne can whisper into the ear of Prime Minister Datuk Seri Abdullah Ahmad Badawi to seriously look into the issues affecting disabled people in a holistic manner? Surely a few words from lips of the wife is worth a thousand words of disability rights advocates who have been unsuccessful in impressing the government on the real and urgent needs of disabled people.

The Star
Monday September 8, 2008
Jeanne visits paralympic team
By CELESTE FONG

BEIJING: Developers have been urged to design more disabled-friendly housing projects.

Datin Seri Jeanne Abdullah, the wife of Prime Minister Datuk Seri Abdullah Ahmad Badawi, who was touched by the disabled-friendly facilities she saw at the Paralympic Games Village here, said: “We should do more for the disabled.

“I hope schools will encourage and teach children to help (the disabled) if they see a disabled (person). We should change our mindset to be more caring,” she added.

Pointing at the disabled-friendly ATM machine booth, Jeanne said the facilities in the village showed the level of consideration for the disabled.

She was also awed by the spirit of the paralympians and the courage displayed by them, saying that Malaysians could emulate them.

“This is what we should be doing in our country,” she said, hoping that Malaysians could raise the level of consideration for the disabled.

Jeanne, the patron of the Malaysian Paralympic Council, was accompanied by Youth and Sports Minister Datuk Ismail Sabri Yaakob, Malaysian Ambassador to China Datuk Syed Norulzaman Kamarulzaman, Kuala Lumpur Mayor Datuk Ab Hakim Borhan and National Sports Council director-general Datuk Zolkples Embong to the games village here.

On the Malaysian paralympians, Jeanne, who met them in the village, said Abdullah had conveyed his best wishes to them.

The Malaysian paralympians will begin their respective events today.

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