Braised pig trotter with fatt choy, New She Lai Ton Restaurant, Ipoh.
Photo taken with the Samsung Galaxy S II.

With the festive celebrations over and done with, I can finally breathe a sigh of relief. It has been an especially difficult time for me. I had a hard time resisting all the good food that came with the ocassion. In fact, I worry that I may have over-indulged.

I need to seriously go back to the basics of my dietary requirements of low-everything; low-protein, low-sodium, low-purine, low-phosphorous, and now, low-cholesterol. Anything to preserve whatever renal function left in my kidneys.

Another blood test is due in two weeks. The doctors ordered it to check if Lipitor has any adverse effect on my liver and especially my kidneys. The most serious being rhabdomyolysis. This is the breakdown of muscle tissues that leads to the release of a huge amount of myoglobin into the blood stream and causes kidney failure.

The only side effect that I experienced so far was the first few days after I began taking the medicine. My philtrum and upper lips twitched incessantly. The twitchings stopped a week or so later. The blood tests shall reveal whether I suffered other subclinical effects.

When I sustained spinal cord injury 27 years ago today, I had to learn anew everything about my body again. My limbs could no longer move they way they used to. My bladder had to be emptied with the aid of catheters. I needed suppositories to move my bowels. Even my diaphragm function was impaired which affected my breathing.

It has not been easy for me all these years, more so when the world is not built for people with impairments like mine. Moving around in a wheelchair is like traversing an obstacle course even in the most modern parts of Kuala Lumpur. I would love to be more active but the inconvenience of overcoming these barriers wore me down quickly most of the time.

So after 27 years, my body is worn out before its time from over-exertion and over-compensation for reduced muscular functions and in pushing the wheelchair. My fingers are bent. My wrists, shoulders and right knee aches. My kidneys are failing from urinary tract infections and vesicouretal refluxes. In essence, I am living in a body much older than my age.

But all is not that bad. I got to befriend some interesting people and see the world from a different perspective. I learnt to accept the limitations of my impairments and made the best of whatever was thrown at me. Most importantly, being a disabled person, I am conscientized by the issues faced by my peers. This led me to do what I am doing today – promoting disability equality – so that disabled people are accorded the rights we deserve in society.

Someone wise said fate chooses our relative, we choose our friends. I beg to differ. It is fate that chose my friends for me too whom I otherwise would not have the honour to be acquainted with had my life took a different turn. Here’s a toast to friends who have made my 27-year journey with spinal cord injury more meaningful. Thank you for making it less arduous than it could have been. Thank you for being there for me one time or another. I could not have asked for more.

The needles no longer give me the jitters anymore. It could be that I have become hardened to the pain or the phlebotomists (individuals trained to draw blood samples for medical testing) that I encountered were very good at what they do. I used to turn my face away to avoid seeing the needle going into the skin. Now, I watch the entire blood extraction process.

Renal function test, liver function test and lipid profile results.

I went for a blood test last Friday and then for the scheduled appointment at the UMMC spinal rehab clinic on Wednesday. Serum creatinine has gone up a little to 291 umol/L, nothing to be unduly worried about as it has been hovering around this level for a while now. On the other hand, the low-density lipoprotein level is above normal at 3.09 mmol/L.

The doctor advised me to watch my diet. Admittedly, I have been rather reckless with what I eat lately. I am scheduled for another blood test in November and also a KUB (kidneys-ureters-bladder) ultrasound at the same time. Hopefully, by going on a healthier diet now, the results then will be more favourable.