‘He’s not disabled, he has special ability’: New Straits Times – June 14, 2009

NST Online » Local News
‘He’s not disabled, he has special ability’

KEMAMAN: People with a disability should not be referred to as “disabled” but rather “people with special ability”, said Youth and Sports Minister Datuk Ahmad Shabery Cheek.
He said the term “people with special ability” should become a common phrase when referring to persons with a disability so as not to portray a negative perspective.

“Many of them are not ‘disabled’ as they have special qualities that sometimes not even a normal person can match.

“For example, a Paralympic athlete has a higher level of commitment, determination and competitiveness compared with a normal person,” he said.

Apart from sportsmen, they (disabled) have also contributed vastly towards the growth of a nation, with many of them becoming doctors, teachers, lecturers, businessmen and craftsmen.
At the same time, there are also normal but “useless” people around, such as drug addicts and criminals, who do not in any way contribute to the nation.

Ahmad Shabery said this after opening the Higher Institution National Expedition and Camping programme at Kolej Universiti TATi campus, here yesterday.

He earlier handed out contributions to 140 less fortunate children from six Department of Social Welfare community centres in Chukai, near here. — Bernama

Rapid Penang To Operate 140 Buses With Ramps

Wuan alerted me to the following piece of news in the New Straits Times Online just now. My first reaction was a cynical snicker. I have heard one too many tall tales from RapidKl, Rapid Penang, Syarikat Prasarana Negara Berhad and even the Second Finance Minister Tan Sri Nor Mohamed Yakcop regarding the accessible bus issue to know better and take news like this with a generous pinch of salt.

I checked around and none of my well-connected friends in Penang have seen the prototype of a Rapid Penang bus with the ramp installed yet. This is how it is in Malaysia. Stakeholders are not consulted on their needs and do not have a say in how these needs are being managed. RapidKL was deaf to the various comments on the prototype of accessible bus and went ahead to build similar buses with ramps and wheelchair locking devices that are neither functional nor safe to use.

Is this going to be another fiasco like RapidKL’s? Time will tell. Nevertheless, having been involved with these people, I am not too optimistic. How do you expect people who have very little understanding of what disabled people’s needs are to do the right things? But this is how things are being done in Malaysia. We spend money building amenities that are not functional and then spend money again to rectify the mistakes, or maybe not at all. Malaysia Boleh!

NST Online » Local News
Wheelchair ramps on buses

GEORGE TOWN: RapidPenang buses are set to be more disabled-friendly with the move to install wheelchair ramps on board its 140 new buses.

The installation of the wheelchair ramps is expected to be completed by early next year.

RapidPenang chief executive officer Azhar Ahmad said the disabled-friendly buses would be delivered in batches from March.

“The ramps will ensure that the disabled can commute on public transport,” said Azhar.

Blogs Of Courage: NST – Tech & U – April 7, 2008

Blogs of Courage - NST - Tech & U - Cover - April 8, 2008
Click on image for larger version.

Blogs of Courage - NST - Tech & U - Cover - April 8, 2008
Click on image for larger version.

Blogs of Courage - NST - Tech & U - Cover - April 8, 2008
Click on image for larger version.

New Straits Times

When Daren Lee started to blog about his son’s epileptic condition in 2006, little did he realise the impact it would create. The blog inspired many, and gave new hope to others.


By Cindy Koh

IT all started out with curiosity. Daren Lee began fiddling with blogging sometime in September 2006, when he wanted to start a blog for his church’s youth service. He subsequently got hooked and went on to start to blog about his older son, Nathanael’s epileptic condition.

The blog, www.darentiff.blogspot.com, serves as the main point of connection for friends and family members to get Nathanael’s updates and progress in his medical treatment. It contains details on how the four-year-old was diagnosed with infantile spasm after going through a series of tests at a local private hospital since he was a newborn, how he started treatment (medical and physical therapies) at a public hospital, and the family’s struggles, joys and courage.

It has been a stressful journey for this father of two and his wife Tiffany Tang, as they juggle Nathanael’s condition, work and other responsibilities which can deem the blogging routine challenging. But what kept him and Tiffany (she helps update the site as well) going was the people’s responses to the blog.

Darentiff.blogspot gets from 50 to 100 hits per day and this speaks volumes for Lee, as it is educating and creating awareness of epilepsy, which is often a misunderstood neurological disorder.

According to a World Health Organization report for the Southeast Asia region, at the global level, it is estimated that there are nearly 50 million persons suffering from epilepsy, of which three-fourths or 35 million are in developing countries. Many people who have family members with such disease are still reluctant to talk about it, as it is seen as a curse or an incurable evil disease.

“The responses have thus far been very encouraging and through the site, the respondents learned, rejoiced and were inspired or ministered to,” Lee says. The family has also made friends online that led to five families from different race and religion forming a support group of sorts. But most rewarding of all, Lee says, is that the family has grown closer through blogging and sharing of information.

The blog has also ignited interest from international viewers, one of whom is a Swedish professional who asked if he could get a video recording of a therapy – Snoezelen – that Nathanael is going through. (It is a room equipped with special lights and music to stimulate senses in the child.)

In addition to that, Lee was invited to write about fatherhood for a Singapore family magazine after the editor visited the blog.

Lee also found out that Malaysians are a compassionate lot. After putting up a posting on Nathanael’s need for a swing to be set up for his occupational therapy session at home, two good Samaritans offered to do it and they are from the Klang Valley. “What are the chances of knowing anyone who could set up a swing here? It’s amazing!” Lee exclaims.

Looking at the hope and inspiration the blog has given to those who visit, Lee sees himself still blogging in five years’ time, perhaps even further into the future. At Press time, he is setting up a domain, www.darentiff.com, to expand on family interests.


By Izwan Ismail

WHAT inspires someone to write a blog, that in turn, inspire others? For Peter Tan, he blogs to discuss the plight of the disabled people. Wheelchair-bound, the 42-year-old Penangite suffers from spinal cord injury and chronic renal failure.

About five years ago, Tan started The Digital Awakening (www.petertan.com), which chronicles his life as a disabled, and shares his experience with others who may be interested.
Five years on, Tan says his life is now more enriched by the Internet experience.

“Through my blog, I can say that more people now have a better understanding about disabled people and the problems that they face every day,” he adds.

Tan has also managed to make more friends, to share and exchange views. “Most of them are bloggers and people who read my blog. In fact, I have made more friends over the last five years through the Internet than I had before.”

In 2005, Tan initiated a fund-raising campaign for the National Cancer Society of Malaysia, Penang Branch. The organisation had provided hospice services when his mother was seriously ill. To show his appreciation, he and four other bloggers shaved their head and raised more than RM5,000 for the society.

“I am forever grateful to the community of Malaysian bloggers who had chipped in and promoted the cause in their blogs. This shows that blogging can make the world a better place,” says Tan.

According to Tan, blogging has also inspired him to lead a life that is as normal as others. “The last five years have been the most interesting in my entire life. I have travelled long distance, visited foreign countries, drive a car, and even got married. I never thought that these were possible.”

To date, Tan has posted slightly more than 1,000 entries in the five years of his life as a blogger. That makes it an average of 200 entries per year.

On the fifth anniversary of his blogging journey recently, Tan wrote, “It is the archive of my struggle within, the things that I have done and places that I have been. Most of all, this blog is a gift to myself for that one day in the future when my memory is not that good anymore. This blog is about me, myself and I. It is about my journey through life. These are the stories that I want to tell myself when that one day comes.”

Another inspiring blogger is Maryani Abdullah. She has Cerebral Palsy, a medical condition caused by a permanent brain injury, which makes speech difficult and voice hardly audible.

Through her blog, Art of Body Expression (http://mariannie-missycat.blogspot.com), Maryani expresses her personal views and concerns.
Her blog has also enabled her to connect with other talented disabled individuals to pursue a common interest – performing arts.

“I want to change public perception that we are an incapable lot. I hope to introduce a new type of innovative art performance, which will be accepted by all, and not just by the disabled community.”

In her blog, Mariani posts lots of pictures and slide shows of her performing arts activities and how the performers have developed physically, mentally and emotionally.

“Through blogging, I hope that my voice will be heard, and more will be done for the disabled,” she says.