Thirtieth year living with spinal cord injury

Thirty years post spinal cord injury. It has been a long journey. I got a little melancholic reading the article I wrote in The Borneo Post last week about this fateful day.

I am still paying the price for the mistake of diving into the swimming pool a long time ago. I am not complaining though. I have to live with the choices I made, good or bad.

A first-year medical student asked me recently if I regretted doing what I did that day.

“There is no point regretting,” I told him. “I cannot change what I have done.”

I may regret doing many things, or not doing others, but this, never. I can wallow in guilt or use the effort to deal with the emotions on more productive deeds.

Frankly, I never thought I would live to see this day but here I am. I have made it! I guess we can never know how far we can go even when we are living one day at a time.

Blood Test for September 2014

This blood test was done six months after the previous one, the longest gap in between tests and routine medical reviews for a while now. Serum creatinine level hit its highest at 337 mmol/L. It was 331 mmol/L in September last year and went down to 299 mmol/L in March this year.

This blood test shows that my kidneys are functioning at 18% of normal capacity. Looking at the history and progression of my kidney disease, the doctor was not too concerned with the results yet as the serum creatinine levels are fluctuating within a narrow range.

I am now edging closer to needing dialysis. I have already decided on the treatment option should that day come, which I hope never. I think am prepared for it but I wonder how my emotional state will be when I hit the threshold.

Blood test for renal function and cholesterol.
Renal function test and lipid profile for September 2014.
Result of calcium and phosphate blood test.
Calcium and phosphate test for September 2014.
CBC September 2014.
Results of blood count for September 2014.
Urine test results for September 2014.
Urine test for September 2014.

Victor’s art activism — The new way of promoting social causes – Breaking Barriers – The Borneo Post – 27 September, 2014

Victor’s art activism — The new way of promoting social causes
by Peter Tan. Posted on September 27, 2014, Saturday

MY first brush with appreciating art was in 1999. I had just move into an apartment and thought it a brilliant idea to adorn the bare walls with framed watercolour postcards of old building facades. Those I thought would give the place I call home an ambience of a time long past when life was simpler.

Breaking-Barriers-Sept-27
Victor (right) is seen with Kampung Hakka Mantin residents committee chairman Chong Tze Yaw at the photographic exhibition in Kuala Lumpur.

Six years after that in 2005, I was invited to an exhibition of photographs depicting disabled people from Malaysia and Thailand.

Unfortunately, I could not make it although I very much wanted to see how disability was depicted in the mainstream.

Fast forward to 2008. A friend invited me to the second instalment of the exhibition of photographs of Malaysian Paralympians called ‘In the Face of Disability’. At that time, I was deep into working on disability rights advocacy. I did not want to miss the opportunity again to learn more about the message and purpose behind those images.

That was where I met Victor Chin, the photographer for both series of exhibitions. I later discovered he was also the painter of the images in the postcards that had so captivated me nearly 10 years before that.

In that second series, Victor displayed images of the athletes in action and at rest in unpretentious poses. He illustrated that beyond the impairments are regular people with dignity, hopes and aspirations and that, in a world that values ‘perfection’, people deemed imperfect can still excel over and above expectations.

It is hard to believe the serendipitous build-up that led to our first meeting and what happened afterwards was not pre-destined. We became fast friends discovering that we shared mutual interests in photography and advocating on social issues. Despite his busy schedule, we often got together to catch up over hearty meals and discuss projects that we could work together on.

Victor, my wife Wuan and I have since held a joint exhibition on a macabre topic yet one that was close to our hearts. We each contributed 20 photographs respectively on the death of my mother and his. Aptly titled ‘Exits – The Mystery of Death’, the exhibition ran for four weeks at the Kuala Lumpur Performing Arts Centre.

Victor is a great mentor who is always generous in sharing his knowledge. He taught us the finer points of organising an exhibition and to curate the photographs that tell a strong and meaningful story. We were heartened by the responses from visitors to the exhibition who found meaning in the images we shared.

As I got to know him better, I learnt that he is more than a renowned painter, photographer and writer. Among the other hats that he actively wears are historian, heritage conservationist and activist for oppressed communities.

At the Kuala Lumpur Photography Festival last week, Victor gave a talk and displayed a series of black and white photographs of Kampung Attap in Mantin, Negeri Sembilan, in what he named ‘Photography: An act of resistance’.

The village is also known as Kampung Hakka, owing to the fact that the majority of the population are descendants of Hakka immigrants who came to work in the tin mines and settled in the area more than 100 years ago.

The land the village stood on is slated for development. The villagers have been asked to vacate the houses they have lived in for generations. According to Victor, there used to be 300 families in its heyday but now only 30 families are still living there — adamant to stay on and fight the eviction that they feel is unjust and improper.

Ten houses were forcefully demolished by the developer last year — four of which were still occupied at that time. Villagers and activists who stood shoulder to shoulder to prevent the destruction were arrested by the police.

“This is the situation that attracted me to Mantin. I am not from there. I am not in any way related to any of the people in the village,” Victor shared about how he got involved in the issue.

“When I saw this on social media, in the newspapers and on television one year ago, I visited the village and then again with some friends.”

Together with the villagers, Victor and friends formed the Rakan Mantin Facebook Group. The group describes itself as “a community initiative to promote and to protect historical and cultural landscape from indiscriminate destruction”.

“Photography can do many things. It depends on what you want your photographs to do,” Victor told the audience listening attentively at the talk.

“I am using photography as a tool to express resistance, to express opposition, to express the feelings of the people in Mantin that they are not happy with what is happening and they want to change it.”

He spends most of his weekends in the village organising and overseeing events to document and introduce a fast fading village lifestyle to urbanites and those who have never had the chance to experience it.

Visitors and participants of various event organised by Rakan Mantin are encouraged to preserve the village for posterity with their cameras and through other media. They can then contribute their works to the Interpretative Centre set up in one of the houses in the village where stories, artefacts and other materials are collated and chronicled as joint narratives for the benefit of future generations.

During a lull of visitors at the exhibition booth where his photographs were being displayed, I remarked to Victor that he is a man on a crusade fighting for the downtrodden. In response he said, “No, I am not on a crusade but an artist with a conscience.”

That he undoubtedly is, doing it at his own expense unconditionally most of the time for the common good and for safeguarding the historical and cultural values that many of us have little inkling of until then. Along the way, he has made allies of strangers and roped friends into causes we would otherwise not get involved in.

From promoting the understanding of disabled people, to preserving urban heritage buildings, to helping villagers on the brink of losing their homes, he has never shirked from doing what he believes is morally and ethically right. Victor’s application of art activism has certainly given fresh perspectives to social issues with the use of alternative approaches in promoting and supporting those causes.

Comments can reach the writer via columnists@theborneopost.com.

Read more: http://www.theborneopost.com/2014/09/27/victors-art-activism-the-new-way-of-promoting-social-causes/#ixzz3G6uipvJF