Disability Issues – Page 5 – Peter Tan

Blood Test and Complete Blood Count for March 2013

I had blood extracted for a series of tests on 4th March 2013 before seeing the nephrologist the following week. They were Renal Function Test, Liver Function Test, Complete Blood Count, Lipid Profile, Nutritional Anaemia and calcium-phosphate test. It was to be my first time consulting a nephrologist at the University Malaya Medical Centre.

I went to see the nephrologist on 11th march 2013. Serum creatine broke the 300 umol/L threshold to hit 301 umol/L. It was unsettling to see the creatinine slowly creeping up the scale. Dr Wong, the nephrologist, explained that at some point in time in the future, I will need dialysis. I am at a pre-dialysis stage and need to be prepared for it. He explained the two options available to me – peritoneal dialysis or hemodialysis.

For hemodialysis, I need to go to a hemodialysis centre where I will be hooked up to a machine to have the waste product in my blood filtered. Each session lasts about four hours and has to be done thrice weekly. For this method, I have to have to undergo a surgery to create a fistula for blood to be extracted dialysis and then returned.

In peritoneal dialysis, a catheter is used to fill the abdominal cavity with dialysis solution. The solution draws waste from the body using the membrane in the abdomen called peritoneum as a filter. The waste is then drained away through the same catheter. This procedure has to be repeated every six-hourly and can be done anywhere.

A Complete Blood Count was also done to check on my anemia. The figures looked horrible with most of the blood elements tested coming in below the average ranges. Serum calcium-phosphate test show that I am hypocalceamia or low blood calcium concentration. There is no treatment recommended at the moment and I had to go back to see him in another three months which coincides with my appointment at the Rehabilitation Medicine Clinic.

However, Dr Wong suggested that I start on Ketosteril again and gave me two boxes to start off. That supply will last me forty days at two tablets twice daily. I had stopped taking it after I developed itching. I have been taking it for one month now and have not experienced any allergic reaction so far.

My LDL level went up because I stopped taking Lipitor for three months to see if it was causing the urea level to go up. Apparently, it did not as urea level was still high. I have since gone back to 10mg daily. I hope the next blood test will show better results.

Renal and Liver Function tests and Lipid profile done on 4th March 2013.

DET at Supported Employment Seminar in Melaka

The Jabatan Pembangunan Orang Kurang Upaya (JPOKU) in collaboration with the Japan International Cooperation Agency (JICA) organised the Seminar Sokongan Pekerjaan Kepada Orang Kurang Upaya (Seminar on Supported Employment for Persons with Disabilities) at Avillion Legacy Melaka in Melaka today.

This state-level seminar for Negeri Sembilan, Melaka and Johor was attended by about 180 participants comprising staff from Community Based Rehabilitation centres and employers planning to recruit disabled persons, among others.

This seminar provides exposure and awareness to the public and potential employers on the approach used in supported employment for disabled persons. Current employers were also at hand to share their experience on supported employment and job coaching. It was also an opportunity for cooperation between the various governmental agencies involved in this project and the private sector.

I was invited to facilitate the first session on Disability Equality Training titled “What is Disability?” Ivy Pua supported me as the co-facilitator. This seminar is similar to the one in Kuching where I conducted the same session for participants from all over Sarawak.

Photos of Road Hump Removal at Pandan Perdana

When Majlis Perbandaran Ampang Jaya (MPAJ) came to remove the road hump on 16th January, I was away at Bandar Baru Sentul for the Regional Asia Pacific Training of Trainers on Disability Equality Training workshop. Otherwise, I would have loved to see it being removed. Jamali Othman, the MPAJ engineer was on site to oversee the demolition work together with Gary Lim, Head of Legal Bureau for MCA Pandan Division, and his assistant Winnie.

MPAJ officers using the backhoe to scrape away the road hump.
Image courtesy of Gary Lim.

Gary and Winnie had been pursuing the matter with MPAJ on our behalf after Dorothy Cheong, the ahli majlis for our zone, did little to help us resolve the issue. As part of our campaign, we had sought legal advice as another option which we are glad we did not have to resort to. With help from friends we got the story published in Berita Harian and The Star. At the same time, as residents whose houses faced the hump, we sent a complaint to the Yang DiPertua MPAJ via email, outlining our objections on 28th October 2012. Jamali came to see us on 8th November 2012 to discuss a solution to the matter.

Another shot of the removal of the hump by MPAJ.
Image courtesy of Gary Lim.

We initally approached Jenice Lee, the ADUN for Teratai, after the hump was built. She had asked Dorothy to look into the matter. Dorothy kept insisting that the hump was built at the request of a majority of ten residents along the road. She also said “I believe people of your situation would more than welcome it because it will practically slow down vehicles from speeding and thus safety is the priority in the mind of these residents in your neighbourhood.”

The neighbours with Jamali Othman (3rd from left), Winnie (4th from left) and Gary Lim(right).
Image courtesy of Gary Lim.

My lengthy explanation to her and Jenice that the hump is a barrier to my mobility and a hazard to my safety fell on deaf ears. Jenice then suggested a meeting with the other residents to sort this out. We unanimously objected because when the hump was built outside our houses, we were never consulted first. Jenice even mentioned that “From the picture I received, the hump is built in between your house and your neighbour.” It was clear how little she understood what our complaints were all about.

In our letter to the Yang DiPertua, we pointed out that other residents were invited to sign a petition for the road hump twelve days after it was built, contrary to what Dorothy told me in her second email that MPAJ had received ten requests to install the road hump from residents in July 2012. Up till today, I still cannot understand why there was a need to get residents to sign the petition when a request by ten residents had already been submitted and approved by MPAJ earlier.

Dorothy was reported in The Star to have said, “We can’t entertain one person’s complaint as we want to help everyone.” Did she mean to say that my safety concerns are irrelevant? As a disabled person, I do not have the right to object to facilities that will endanger me, especially when it is right outside my house? She also obviously left out the fact that my neighbour had gone to her office to make a complaint and sought her assistance on this matter as well.

Anyway, I am glad this is all over now. Many people had a hand in helping us resolve this matter in one way or another. Thanks to Gary Lim and Winnie for their relentless pursuit to have the hump removed; Pierce Wong who connected me to Datuk Wong Sai Wan to get the news published in The Star; Paul Choo who came out with the caricature to highlight the issue; Edmund Bon, Khor Boon How and team for the legal advice; and to everyone who has supported us. All your effort came to fruition. Thank you.