The holidays after the weekend is over. I am glad. It took me this long to recover from those four days of excesses. Weekends and holidays allow Wuan and I to spend the whole day together. We only get to see each other for a few hours on weekdays. But holidays make me sick. There are just too many things to do, too much excitement, too little routine and practically no time for rest. Contrary to my perception of my adaptability, I thrive on routine. I like the routine that I keep. It gives me a sense of control on my life.
My weekdays are very structured; I keep to a low-protein diet, drink every hour, catheterise every three hours and take plenty of rest in between. This routine keeps me alive and healthy, to a certain extent. It slows down the progression of my renal failure. Holidays and weekends are different. We are usually out for the entire day. It is difficult to adhere to the diet when temptations abound. I do not drink as much to reduce the need to look for accessible toilets. Clean ones are difficult to come by. People here simply do not know how to use public toilets and keep it clean and dry for the next person.
After a couple of years of living outside my comfort zone, I have retreated back into it. Loving my weekday routine is proof of that. This is not necessarily a good thing but not a bad thing either. Trying to fit into the mainstream is taxing especially when the environment is fraught with barriers. My energy level is already below its midway mark. Traversing the attitudinal and physical barriers takes a big chunk out of that. I have a choice; fight it and get burnt out at the end of the day or take a step back and preserve my energy for more worthy endeavours. The latter seems more sensible, for now.
Unwitting victims of other people’s misconduct - Breaking Barriers - The Borneo Post - 11 January, 2014
Flood preparedness for disabled persons — Are we doing enough? - Breaking Barriers - The Borneo Post - 4 January, 2014
The case for accessible homes - Breaking Barriers - The Borneo Post - 28 December, 2013
I was an angry man last week - Breaking Barriers - The Borneo Post - 21 December, 2013
Giving back meaningfully - Breaking Barriers - The Borneo Post - 14 December, 2013