28th Anniversary Of My Spinal Cord Injury

Every year this day, I spend some quite time reflecting. I no longer think so much about how my life could have turned out had I not made that fateful dive into the pool. I could have become an engineer like what my father wanted me to be to take after him. I could have become a politician. I could have turned to crime. I could be very dead by now. I will never know. That is not important any more. I cannot turn back the clock and change that any way.

Instead, I reflect on what I have done so far with what I have and what I can be. Life is too short to be wondering about what could have been. Searching for a purpose in life was difficult in the beginning. It took a lot of hits and misses for me to discover what I wanted to do and one that I could do well in. Blogging was the first step. Then I had the fortuity to make friends with people who nudged me in the right direction. Kuan Aw and Christine deserves all the credit for being the wind that filled my sails when I first set out from the harbour.

Dr. Kenji Kuno of the Japan International Agency (JICA) gave me every opportunity available in his collaborative projects with the Jabatan Kebajikan Masyarakat since 2005 to learn about Independent Living Programme (ILP) and Disability Equality Training (DET). My perspective on disability and rights of disabled people are shaped by the philosophies and principles propounded in these courses. I am now a senior trainer for DET and resource person on ILP because he gave me many opportunities to learn and put them into practice.

Wuan is instrumental in encouraging and supporting my work in disability advocacy. Without her, I would not be able to do so much. I may be independent but I still need assistance with my activities of daily living. Wuan helps me with that and that makes it convenient for me when I am out and about. Even at home, my life is easier because she makes sure that my needs are well looked after before she goes to work and after. She is always there for me. Indeed, she has been my pillar of strength since the beginning of our relationship.

On this anniversary, I want to celebrate these wonderful people who have come into my life and made a difference in so many ways. I am who I have become today because they have been generous with their kindness. They have proven that disabled people, given the opportunity and support, can achieve much more than we are made to believe. I am that irrefutable proof.

The road ahead may still be long but because of the foundation that they have helped me build, I am now doing work that is not only personally fulfilling but one that has the potential to change society for the better. To them, I want to say a big thank you from the bottom of my heart. My life is all the better because of you.

Tan Kuan Aw Talks Through His Cartoons

Tan Kuan Aw on current issues in Malaysia in cartoons
Image courtesy of Tan Kuan Aw of Draw 3 Draw 4.

My good friend Kuan Aw has a “cartoon blog about life in Malaysia.” These cartoons are on current issues. They are satirical yet relevant. Do check out Draw 3 Draw 4 for a slice of kopitiam talk from the viewpoint of a man who is just a few years older than the country itself.

Plight of the disabled: The Star, Metro North – February 14, 2009

Saturday February 14, 2009
Plight of the disabled
By LOOI SUE-CHERN

TOILETS for the disabled are often too small or are locked.

These are some of the problems faced by the disabled at some places in Penang, said Society of Disabled Persons (Penang) former president Tan Kuan Aw.

Tan, who is wheelchair-bound, said there were also toilets for the disabled which had been turned into storerooms because the managements of buildings where these toilets are located think not many people use them.

He said there were specifications that must be complied with when facilities for the disabled are provided such as handrails for ramps.

But after studying the situation in Penang for a decade, Tan did not think the local authorities were serious when it came to ensuring that these specfications were adhered to.

“The setting up of a barrier-free facility like a toilet for people with disabilities just for the sake of it is a misunderstood concept. There are Sirim standards and requirements that need to be followed,” he said in an interview.

A check by The Star in public places around Penang proved Tan’s descriptions of several public toilets accurate.

One such toilet in a building along the Jelutong Expressway was so small that a disabled person in a wheelchair would find great difficulty to close the toilet door from the inside.


Tight space: A woman in wheelchair demonstrating how difficult it is to use the cramped toilet for disabled persons.

The reason for this, apart from the size of the toilet, is that the toilet door opens the wrong way. It opens inward, instead of outward or sliding.

Another toilet for the disabled persons in a shopping mall is occasionally locked and those who want to use the facility must find the cleaner who has the key, as instructed by a sign stuck to the door.

As for ramps, Tan said some were built without handrails. But in the case of the ramp at the Taman Sri Pinang flats on River Road, it was crossbars that has become a barrier for the disabled.


Stumbling block: A ramp with handrails is provided at Taman Sri Pinang but disabled persons, especially those in wheelchairs, cannot proceed further with the locked crossbars blocking the building’s entrance.

Although the ramp has handrails, it is not barrier-free as there are crossbars at the bottom to prevent motorcyclists from using the ramp.

Women’s Centre for Change (WCC) committee member Lim Kah Cheng, who is an ardent activist for people with special needs, said the bars could also be a hindrance during emergencies like fires.

She said ramps could be designed in a way that motorcyclists could not misuse them, adding that the Penang Municipal Council (MPPP) had agreed to look into the matter.

“Instead of a ramp, a winding path that motorcyclists will find difficult to manoeuvre their vehicles on can be considered. The council already has the design which is not costly to follow,” said Lim, who is also an MPPP councillor.

Her other complaints include the putting up of signboards, road signs, advertisement boards and other obstructing objects in the middle of pavements or walkways; and high pavements.

Lim said the trick would be to get things right the first time – constructing buildings and providing public facilities that were universal.

“If you build a ramp, build one that is for everybody. What is good for the disabled is good for everyone else,” she added.


Danger lurks: This bus stop at Jalan Dr Lim Chwee Leong is unsafe for disabled persons, especially for the visually impaired and those in wheelchairs.

MPPP president Datuk Zainal Rahim Seman, when contacted, said the council would take serious note of the problems faced by the disabled with the existing facilites.

“Our officers will conduct checks on these facilities to see if they comply with the required standards. If developers do not comply with building requirements, we will not grant them the CFs,” he added.